This is so wonderful that you turned your sons curiosity of the disease and had him helping to support finding a cure for his disease. My daughter just turned 5 and she was diagnosed with Juvenile Polymyositis at 3 years old. I have found no one that has this disease this young of an age. I only find adults or older kids with JPM. I can only find kids with Juvenile Dermatomyositis thats my daughters age. Thank you for posting this.